Sunday, January 24, 2010

collagen and mosaicism

I danced for about an hour last night and noticed that once I was warmed up the faster dances "felt better". I hated to leave the 57th. The music was really good. I wish I had a better superlative, but really good is all I can come up with right now. Somehow, I have fallen into the nicest group of folks. That is how I am feeling. Like I fell down the gopher hole and on the other side was dancing and light and general good will. No, I am not Pollyanna, but if we take the time, we can look sometimes into the darkest soul and see the purest light. We just need to give it the little puff of an air kiss and a bit of tender ( yes baby I know it is spelled tinder) from time to time. If the flame burns bright, we have to give it a bit more fuel to keep it from burning out until it can burn brightly for itself. You know how the sunrise at Myrtle Beach creeps over the horizon just before we see the sun itself? That is the flame of a soul reaching for us when we open our eyes.
I might be a pyromaniac.
Speaking of eyes burning bright.
I have noticed that when my circulation is not good, I lose my eyes in folds of lids. Sometimes I look really sleepy.
Collagen problem.
I have a collagen problem of course. A midline defect or a genetic collagen deficiency. A problem with collagen easily explains my worsening scoliosis until I started dancing. Somehow strenghtening my muscles is keeping my back relatively straight, but I have recently noticed that parts of me that haven't seen the sun in a very long time have begun to take on the appearance of a partially deflated mylar balloon whereas those parts that are never covered do not. Maybe it's related to Vitamin D . . .
And that might also explain why my knuckle won't heal. I injured it in October, and it just does not want to heal.
If I did not have blood relatives, these ruminations would have no value, but I do, and if this is genetic they need the information.
And since folks with congenital heart problems have been found to progress sometimes rapidly to pulmonary failure, I am putting all this on here. Everything that is coming out of my fingers seems to come before thought. . . sometimes my mouth too . . .humm
Well before, but especially since my valve surgery in 2002, I have done everything I knew how to do to be healthy so that I can get my children to adulthood. I had to finish my teenage years with only one parent, and I did not want that for my kids.
What was this blog about? Pulmonary hypertension
Today after dancing about an hour last night, I feel good. I had some coughing last night on the drive home, but no syncope or dizziness. With the first dance I was a little unsteady on my feet, but I think it was because I was a little worried. But my dance partner was a friend who is apprised of my condition. That made me comfortable and the whole evening enjoyable. Until I get some real guidance from the Cleveland Clinic, I am only going to dance with partners I know.
Coffee made me feel better this morning since I am addicted to caffeine.
HR 72
RR 16 and grossly eupnic
no peripheral edema and I can see my eyelids
Chest is tight, but this is not new, and now that I know where it is coming from, I can rate it as still a one.
I have crossed off the things I am no longer worried over. The list is long.
I think I will head for a tanning bed.

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